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Walking for Emily

PUBLISHED: 10:46 26 March 2010 | UPDATED: 09:30 01 August 2010

BUNGAY firemen are to go on the march next week to help the plight of a little girl suffering from a rare life limiting illness.

Four-year-old Emily Crisp, from Halesworth, was born with Bohring Opitz syndrome, leaving her severely disabled and suffering multiple health problems.

BUNGAY firemen are to go on the march next week to help the plight of a little girl suffering from a rare life limiting illness.

Four-year-old Emily Crisp, from Halesworth, was born with Bohring Opitz syndrome, leaving her severely disabled and suffering multiple health problems.

Her plight has so moved the Bungay's retained crew that they are trying to raise £3,000 to buy s sensory trolley to provide her with some comfort.

The portable trolley includes a projector, bubble system, fibre optics and other items, which can turn her bedroom into a sensory haven and help her relax.

Emily and her mother Louise, who have recently moved to Exeter, are relatives of Bungay's sub-officer Jock Wilson.

The Bungay crew will be joined by firemen from Beccles and Halesworth for a sponsored walk from Bungay to Beccles fire station on Easter Saturday, April 3. Halesworth firemen are also backing the appeal.

About 12 firemen will leave the Butter Cross in Bungay Market Place at 10am on the walk, dressed in full firemen's kit, including breathing apparatus. But before that, collections in aid of the appeal have been organised.

Bungay firemen will be at the Rainbow foodstore at Hillside Road East tomorrow from 9am-3pm to receive donations, and Beccles firemen will be outside the QD store in Beccles town centre tomorrow from 10am-2pm.

Halesworth firemen are backing the appeal with a collection at the Halesworth Rainbow store next Friday, Good Friday, from 10am-1pm.

Bungay fireman Vaughan Shea said: “Jock first brought Emily's plight to our attention and we wanted to do something to help. It touched our hearts and we thought we would try to do something for Emily. The walk is the first of a number of fundraising events which we hope will enable us to reach our £3.000 target.”

Bohring-Opitz syndrome is a rare genetic condition of uncertain inheritance, which is identified by a number of abnormalities, and it severely affects development. It was first identified in 1999 and is so rare that only 15 possible cases have been reported.

People can donate to the firemen's fundraising to buy the sensory trolley at the collections in the three towns, at the Butter Cross on April 3 where the firemen will gather before they start their march, or along the route.

They can also give them to any member of the Bungay crew, who meet at the fire station at Hillside Road West each Tuesday evening for training.

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